Samuel Bain turns one year old with life-saving surgery

Judith Rodgers and Colin Bain celebrate with son Samuel, born last August with a rare, late-in-life disease. ‘It’s a small home, so we knew it was going to be a really special day’

Judith Rodgers and Colin Bain celebrated Samuel’s birthday over a plate of spag bol with his brothers, Samuel Jr and Charlotte, last week.

Samuel, born last August with a rare, late-in-life disease, had a big part to play in what was a low-key family event at their family home in Rugby.

“Samuel had a fabulous day,” said Rodgers. “He absolutely loved it.”

Samuel is not short of friends. Two friends and his grandparents rang in his birthday.

“When we heard he had a hole in his heart,” Rodgers said, “we really thought he was going to die at birth.”

Samuel was born with flutters, or Vascular Endoleaks, a rare heart condition that affects an estimated 1 in 50,000 babies born in the UK.

Rodgers and Bain attended Samuel’s open heart surgery at the Great Ormond Street hospital in April, when surgeons repaired three small holes in his heart.

In 2012, the couple, who both are fitness instructors, had to raise money to treat Samuel’s brother, Liam, when he was very ill.

The couple told their story to Good Morning Britain: “We lost Liam at three-and-a-half years old to undiagnosed cardiomyopathy … but with the most amazing help from the public, we were able to raise £50,000.”

They are now fundraising for another heart operation to ensure Samuel has a normal life.

Roach said: “We want to raise £30,000 in 15 months.”

Rodgers said she and Bain would soon be embarking on a family adventure: they have both signed up for a mountain trek in Bhutan.

Liam’s mum and Dad visited their son in 2011 as they cycled to India.

It was for his party, nine years ago, that the family reunited.

As Daniel Roach wrote on GuardianWitness: “It was amazing to have such a warm, welcome atmosphere.”

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